Information is healing
Here is a small list of resources to help you and your loved one through this journey with Alzheimer’s disease:
The national Alzheimer’s Association provides information about Alzheimer’s disease, including resources, research advances, publications, and events.
National Parkinson Foundation
The organization provides information about Parkinson’s disease, on-line tests for tremor and clinical depression, Ask the Doctor forums, and other resources.
The 36 Hour Day: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life by Nancy L. Mace and Peter V. Rabins (The Johns Hopkins University Press). The classic guidebook for families and caregivers that offers informative insights and clear, specific, and realistic advice.
Alzheimer’s Early Stages: First Steps for Family, Friends and Caregivers by Daniel Kuhn and David A. Bennett. (Hunter House, 2003). With the advent of earlier diagnosis, a much needed book on the early stages of Alzheimer’s to help families cope. It includes an excellent resource section.
Dementia Beyond Drugs by Al Power, M.D. (Health Professions Press, 2010). An excellent and provocative recent book about drugs and dementia which advocates away from using psychotropic drugs and the importance of environment, behavior, and activities.
Why Do They Do That? by Teepa Snow. A two-hour workshop for family and professional caregivers, to help explain the complexity Alzheimer’s and memory loss, it’s impact on the brain and the person who suffers from the disease, and practical ways to interact, help, and connect. It’s funny too. The video can be obtained here.
The Alzheimer’s Project. This four-part documentary hosted by Maria Shriver can be viewed online at www.hbo.com/alzheimers/ and is available as a 3-CD set at Amazon and other retailers. A presentation of HBO Documentary Films and the National Institute on Aging, it includes cutting-edge research, interviews with individuals at various stages of the disease, and the experiences of caregivers.